I
can’t start this posting without first mentioning my huge pride in my little sister,
Becca.
On
Wednesday, Becca is due to marry Ron, a wonderful man who everyone in the
family adores. Now you might imagine that for the last weeks leading up to the
wedding she has been focussing on all the planning for such a momentous event.
In fact, she has been sitting university exams in architecture, and excelling:
scoring in the top ranks of her year-group including a recent 100%. And as if
that’s not enough, she decided to make her own wedding dress, because life just
isn’t sufficiently busy.
But
her trailblazing isn’t new. Becca was the first member of our family to make
aliyah, about 5 years ago, and being our here without family, and initially
without a job, had the most challenging time of it. She showed it could be
done, which was no small part in encouraging the rest of us to give it a go.
I
wanted to find a link to the other thing I’ve been thinking about, but I can’t
so apologies for the clash in theme.
The
question I had was why is there such a difference in attitudes in consent in
the UK vs. Israel?
I
first noticed this when I opened a bank account. In Jerusalem, I was asked to
sign about 13 pages of forms, each one with dense text. When I asked what I was
signing, or for an English copy, I never got a proper answer, except that it is
necessary to get an account. I know that in the UK we do also sign saying “we
have read the terms and conditions”, but that seems less frightening than
signing 13 pages individually, each confirming that I giving away some other
right.
This
would all be no more than an intellectual curiosity, except that I’ve found
it’s started to affect how I explain anaesthesia to patients at work.
So
compare the way one surgeon tried to consent my patient, in the theatres
reception:
“You
want anaesthesia? Please sign here.”
(handing
patient a page of dense A4 text listing all the risks of GA, including
everything from pain to Malignant Hyperthermia and Death)
..to
the way the nice young British immigrant doctor (Yours Truly) put it:
“Now
to explain what will happen in the OR. (explanation of arriving, getting oxygen
mask, IV line and drugs to go to sleep, followed by wake up in the Recovery
Ward).
“I
have here the anaesthetic consent form. It lists all the very rare things that
can occasionally happen under GA. I know it may sound frightening but anaesthesia
is extremely safe nowadays.
“If
after the operation you feel pain or nausea please let us know and we will give
you extra medicines to help with that. Other than that, the much rarer things
that occasionally happen in anaesthesia are:
Damage
to teeth
Vomiting
Aspiration
of vomit
Damage
to Lungs;
Heart;
Liver;
Kidneys;
Allergies
to medication
One
in several thousand remember their surgery despite GA
One
in 250,000 don’t wake up from anaesthesia, which is extremely rare.
Do
you have any questions or anything I can explain better?
If
you’re happy to go ahead, would you mind signing here and dating here.”
By
the end of this, the patient is starting at my wide-eyed (literally. Do you
know that people’s eyes genuinely do go wide when they are afraid?)
They
all sign, but I never feel that I have eased their medical journey.
I
have tried different wording; being humorous; likening the odds to crossing the
street (which is a bit of a lie, I have no idea what the one-off risk of
crossing a road, but I suspect it is actually less than 1:250,000). None of
this works for me. They all seem petrified.
Is
it a kindness to put them through this? And will it ultimately make any
difference? After all, they are signing the same document that includes these
risks and more. In other words, can ignorance be bliss?
I
will keep experimenting with other ways of saying the same thing, and who knows,
maybe some day I’ll find the magic formulae for an informed, confident and
happy patient.
Aaron, doing it this way you show your patients that they are still those who are responsible for their own life. Not all of us are ready to face this fact)
ReplyDeleteSeriously, definitely there are some culture and experience based biases in the doctors' perception of the patients as being ready for taking such responsibility. The same thing can be said about patients. Eventually not all the grown ups believe they are responsible for their lives. But you are right, confidence comes with understanding and it's great that you're trying different ways to help this kind of information being turned into actionable knowledge.
Do you think it is possible and helpful to add a question like "Would you like to know more about rare, though possible, complications or the details seem to be overwhelming and you prefer to just admit your consent?"? I would put it after "I have here the anesthetic consent form." and before going deep into the subject)